IVCC/CCSVI, articles et liens de e jeudi.

Publié le par Handi@dy

Barre google de traduction indispensable!

Je précise qu'il y aura un lien négatif, mais en contradiction avec tous les liens médicaux que je vous ai donnés depuis des mois qui disent que l'angioplastie est une procédure sûre! A vous de vous faire une opinion, vous avez tous les éléments! Je vus rappelle que je vous avais mis le lien vers l'article qui racontait l'ngioplastie subie par Bill Clinton.

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CCSVI Liberation Treatment Patients from the US & Canada migrate to Mexico

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CCSVI nella Sclerosi Multipla - Photos du mur avec texte

 *http://www.msrc.co.uk/index.cfm/fuseaction/show/pageid/2954

 *http://www.msrc.co.uk/index.cfm/fuseaction/show/pageid/2479

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An open letter to the federal health minister about

CCSVI

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The cure for MS includes healthy skepticism and a dose of hope

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Doctors fear a growing addiction to opioids

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MS Cannabis Spray Denied

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MS patients share 'liberation' stories

 

Sask. recipients of new treatment report improvement

*Nanos Interactive
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'It gives me hope,' says MS sufferer

NICK GARDINER The Recorder and TimesKathy Francis, left, shows the evidence of recent test results indicating her jugular vein is blocked. Francis and Amy Preston, right, are among local MS patients who feel angioplasty treatments to remove the blockage should be allowed in Canada to relieve symptoms of the disease.

City and district

Posted By NICK GARDINER , STAFF WRITER

Updated 20 hours ago

Bad news never sounded so much like good news.

When Kathy Francis, 57, of Brockville received test results last week indicating her jugular vein is plugged and prevents the normal flow of blood, it gave the nine-year Multiple Sclerosis patient a rare ray of optimism for the future.

"It gives me hope," Francis told The Recorder and Times during an interview Tuesday at the home of fellow MS patient Amy Preston, who has had a similar diagnosis.

"This is the first hope I've ever had since I was diagnosed with this disease," said Francis.

Repairing the jugular blockage is relatively simple with a common angioplasty procedure.

Francis was diagnosed with MS in 2001 at the same time as her daughter Megan, who is now 32 and lives in Ottawa.

Megan accompanied her mother to a Toronto-area clinic for the August 27 test which involves an ultrasound scan, and is still awaiting her results.

Kathy Francis is keeping her fingers crossed that her daughter exhibits a similar blockage that is simple to undo.

Otherwise, she fears her daughter will never fulfill her dreams of a lengthy teaching career and will avoid having a family because of the likelihood of her own children falling victim to MS.

Despite expensive drug treatment costing up to $30,000 a year, Kathy Francis continues to suffer tremors, pain and numbness, struggles with her balance and had diminished cognitive abilities.


And that's not the worst of it.

"I've had relapses where I have been on my back for months at a time staring at the ceiling."

One such episode lasted six months and two others were in the range of three months, she said.

"I would like to have a normal life again."

Added Preston: "When somebody has an episode like this, they don't know if they will ever come out of it."

Preston, a wife and mother of two teens, went public last month with her own story of MS, a disease of the central nervous system which she has had since 1998.

A former balance-beam specialist in gymnastics, Preston can barely keep her balance walking across the floor heel-to- toe.

Like many other MS patients, however, she was elated last spring when an angioplasty procedure known as CCSVI was identified on CTV's W5 news magazine as a possible method of reducing symptoms and allowing people to regain control over their lives.

But the procedure championed by Italian doctor Paolo Zamboni, who discovered while treating people for blocked veins a side-effect of relieving MS symptoms, remains unavailable in Canada.

Through Internet social networks and research, Preston pursued the cause and connected with hundreds of other MS patients and supporters in North America and around the world seeking relief through CCSVI treatments.

She said it's clear from the improved health of most MS patients who receive the treatment that it is beneficial.

"The evidence is the people," she said.

Petitions for support are being circulated in Brockville and a group of 30 MS patients will bus to Ottawa Sept. 20 for a rally on Parliament Hill to demand change.

"The fact we have to leave our country for treatment is absolutely disgusting," said Preston.

She said other patients are lining up to have their jugular veins assessed for blockages and many, ultimately, resort to taking out second mortgages on their homes and other drastic measures to pay for the desperately wanted CCSVI treatment.

Preston said the treatment costs about $1,500 and is far less pricey and in many cases more effective than a mixed bag of drugs commonly used to help patients.

What's more, it's not an experimental treatment unless you're an MS patient, said Preston, noting it is standard procedure for other people with blockages.

She said she is frustrated with Canada's "universal health-care system" that is too cumbersome and entrenched in its own authority to consider even clinical trials.

As recently as last week, federal Health Minister Leona Aglukkak dismissed the idea and Ontario Premier Dalton McGuinty has also rejected the suggestion.

On the other hand, Preston takes solace in the decision by Saskatchewan Premier Don Wall to allow the procedure in his province and she feels it's imperative to keep the pressure on the federal and Ontario governments.

Meanwhile, Preston has managed to secure an Oct. 27 date for the CCSVI treatment at a clinic in northern New York and admits to feeling mixed emotions about the opportunity.

"I feel relief and excitement but I'm also upset because lots of people who know they have blocked veins can't get the treatment.

"It makes me want to fight harder," she said, vowing to continue to push for change no matter the results of her treatment.

Preston said 3,000 people have received the treatment and many have shown dramatic improvement in their health.

She invites other MS sufferers to contact her for more information by telephone at 345-3565 or over the Internet at www.amypreston@sympatico.ca.

nickg@recorder.ca

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CURE MS Never,never listen to anybody that tries to discourage you... I don't!! Joe

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 Dalin Medical AngioClinic

 *My Labvinco

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Bulgarian hospital offers treatment

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MS & CCSVI – How are they Connected?-- by: The Brian K. McWilliams Foundation

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Liberation Treatment is Not Effective and Poses Side Effects

The liberation treatment announced by Paolo Zamboni in 2009 for treating patients who have multiple sclerosis raised a ray of hope for many. But the effectiveness of the therapy has been questioned by a recent research.

The study conducted by the Canadian Institutes of Health Research and the MS Society of Canada, which was published on August 31 analyzed the biological theory related to Cerebrospinal Venous Insufficiency (CCSVI) and the clinical process employed in the liberation treatment.

The report brought out that there are faults with the procedure discovered by Dr. Zamboni and cautioned it to be carried out on pilot basis only. The liberation treatment follows an intervention, venous angioplasty that is detrimental and leads to stroke and heart problems.

In a nut shell, the report termed the liberation treatment as ineffective and stressed on the need for more research on the CCSVI theory.

Leona Aglukkaq, Federal Health Minister said, “I intend to follow the recommendations of the report and not devote federal money to clinical trials at this time”.

But provinces like Saskatchewan, Newfoundland and Labrador will be financing the trials for liberation treatment. The report included that any funding into the MS’ liberation treatment would raise some more questions regarding the use of public resources in such researches, if trials on MS patients are ethically sound or not and the availability of the treatment at heavy prices by the Government.

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LOG DEDICADO A LAS PERSONAS QUE COMO NOSOTROS, CREEMOS Y SEGUIMOS, LA TEORÍA DEL DOCTOR ZAMBONI

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CCSVI at UBC MS Clinic - Information and Support False Creek Healthcare Centre announces treatment study for CCSVI! They are just putting the final bits and pieces together -- stay tuned! ~Sandra

 *The Liberation treatment, avec vidéo tv

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The CCSVI train rolls through Manitoba: Who’s next?

 *The ccsvi fundation

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The Ccsvi Foundation

MS Society Canada is following our foundation on Twitter. Geez I wonder why??? They are NOT on our side people trust me. Only a one time $2.7 million donation for CCSVI trials out of the $87 million they get per year- absurd!
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