IVCC/VVSVI, vidéos, podcast et échos de murs de ce vendredi.

Publié le par Handi@dy

 

ccsvi-testimonials.jpgBarre google de traduction indispensable!

Une série de vidéos sur des cémébrités anglo-saxonnes ayant la SEP, que j'ai appréciée!

Une mise à jour de Irishbear, Mark Lamp, qui m'a dit que sa maman adorée s'appelait Adrienne!
Il remercie ceux qui le suivent. Il considère qu'il n'a plus la SEP, ses attentes les plus optimistes ont été réalisées!!!
Le temps étant frais, il n'a pas pu vérifier si les symptômes SEP revenaient. Sa vision est excellente! (2 jours après l'OP)
Il dédie cette chanson à la ccsvi:
Une vidéo espagnole qui explique la ccsvi:
 
Vidéo de Dawn Skinner : rdv avec son neurologue qui a voulu savoir où elle allait se faire opérer, combien ça allait coûter. Elle a expliqué qu'elle n'avait pas le choix, le Canada n'opérant pas. Il lui recommande d'aller à BARRIE!
Il a lu les résultats de ses tests ccsvi. IL lui a dit que ni il l'encourageait, ni la dissuadait, qu'il attendait de voir les résultats! Il lui a souhaité bonne chance.
*Echos de murs (j'ai dû en manquer, à cause de ma panne internet!
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*CCSVI at UBC MS Clinic - Information and Support
My doctor who performed my original angioplasty wrote me this today: "The risk of intervening in a location that's already been treated is very high in terms of permanent vein damage/occlusion." To me, this means repeat angioplasties in the same location carry increased risks if we re-stenose. This was news to me -- I hadn't heard of this concern being expressed by doctors doing these treatments before. Anyone else?

*Orna Berkowitz  I just emailed the IR in Seattle who is going to be testing and treating. I told his assistant that there is some confusion and misinformation about the required documents needed to see him. If they could put together an "official" list of requirements it could eliminate her need to answer many emails daily, most of... which are probably the same questions. She is out of the office until September 13th. Hopefully we can get some clarification when she returns.

Marilyn H. Gramlick  Jello. wondering if anyone has any info on seattle place to get the treatment...or in California...and any testemonies??? Thanks very much, truly appreciated...would like to be closest to vanc. as poss. Plse. send me a mess.

*MS Society of Canada - Alberta Division ccsvi

Daryl Thompson  STOP DONATING TO THE MS SOCIETY, AND PUT PRESSURE ON THEM TO HELP HEAL MS PATIENTS. THEY CONTINUALLY STAND IN THE WAY OF THIS EASY LIFESAVING PROCEDURE.

*Dawn Lazelli  Laughing at the statement about MS: "untold suffering." Hey, I've got plenty of TOLD suffering! Got about a million hours to hear it? LOL.
Dawn Lazelli  If the doctors truly knew what it felt like to live with MS, CCSVI would be moving a lot faster.
Dawn Lazelli  ‎'s neuro just said, "We don't have strong control over disease progression. We just don't. I wish we did, but we don't." Yes, he is admitting that the DMDs we take are marginally effective.

 

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