IVCC/CCSVI, vidéos, radio et échos de murs de ce jeudi.

Publié le par Handi@dy

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Je commencerai par une vidéo d'une autre chanteuse SEPienne américaine, elle y parle de sa SEP qu'elle compare à un tatouage indélébile, dit qu'elle vit chaque jour et seconde comme si c'étaient les derniers. Très émouvant pour nous!

Une vidéo où unefemme explique comment elle a compris la découverte de Zamboni
Une question qui peut paraître loufoque mais qui pose problème au quotidien pour les SEPiennes qui ont du mal à cuisiner, surtout si elles ont une famille: "Qu'est-ce qu'on mange à déjeûner ou au dîner?! Comment éplucher, couper, faire cuire quand les doigts sont insensibles ou non opérationnels?
*TV, deux vidéos facebook:
*tv:
*Radio:
**Echos de murs facebook:
 *Deb Turcotte  Do you think it is ethical when a doctor owns shares or stocks in a company or drug that they prescribe to their patients? I'd love to hear your thoughts on this
Il y a 14 heures · Commenter · J’aimeJe n’aime plus · Partager

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      3 personnes aiment ça.
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            Michelle Walsh OFcourse that is not ethical that just goes to what I say to the media right now they make more money off of us being sick then us being well:-)Do we have any factual proof of any doc in this scenario
            Il y a 13 heures · J’aimeJe n’aime plus · 3 personnesChargement...
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            Sandra Whitaker No that would definitely not be ethical, I would think that would be a definite conflict of interests:(
            Il y a 13 heures · J’aimeJe n’aime plus · 2 personnesChargement...
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            Lee Aulis Bev talking here....of course its not ethical but since when was that important doctors are letting hundreds 0f ms people suffer by denying them ccsvi
            Il y a 13 heures · J’aimeJe n’aime plus · 1 personneChargement...
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            Beth Wock no, it is not ethical... but who are we other an a good commodity for the Drs. and drug companies!
            Il y a 13 heures · J’aimeJe n’aime plus · 2 personnesChargement...
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            Kate Crocker hmmmmmm no wonder the ms doc i had treated me like a nobody when i was off meds!
            Il y a 13 heures · J’aimeJe n’aime plus · 2 personnesChargement...
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            Shirley Renshaw CONFLICT OF INTEREST.
            Il y a 12 heures · J’aimeJe n’aime plus · 2 personnesChargement...
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            Eriks Teteris NOOOOOOOOOOOOOOOOOOOOO
            Il y a 12 heures · J’aimeJe n’aime plus · 1 personneChargement...
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            Lori Lumax it is sooooo unethical! it makes me angry to think about... ggggggggrrrrrrr.......
            Il y a 11 heures · J’aimeJe n’aime plus · 1 personneChargement...
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            Sandra Mcneil Not ethical for Doctors.....nor the MS Society which has interest Pharmas......
            Il y a 11 heures · J’aimeJe n’aime plus · 2 personnesChargement...
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            Adrienne Rieckert NO!!!
            Il y a 11 heures · J’aimeJe n’aime plus · 1 personneChargement... ·
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            Jenna Machala In legal terms it is called a "Conflict of Interest". Can be challenged legally if you want to do something about it.
            Il y a 11 heures · J’aimeJe n’aime plus · 3 personnesChargement...
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            Lori MacMullen I would definitely not ethical and a definite conflict of interest. Shame on any doctor that is involved.
            Il y a 10 heures · J’aimeJe n’aime plus · 1 personneChargement...
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            Cynde Route' Definitely unethical. Sports refs don't ref games for their hometown team!
            Il y a 10 heures · J’aimeJe n’aime plus · 2 personnesChargement...
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            Eriks Teteris CONFLICT OF INTERESTS IS THE CAUSE OF ALL THIS CORRUPTION.
            Good night. :( Go to sleep happy, Ho Hum :)
            Il y a 9 heures · J’aimeJe n’aime plus · 1 personneChargement...
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            Jennifer Crossfield Absulotely NOT!!!!!
            Il y a 7 heures · J’aimeJe n’aime plus · 1 personneChargement...
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            David Leven Unethical and Dishonest. Stockbrokers get put away for insider trading much the same thing if they use their position as a doctor to peddle drugs which increase sales and ultimately the share price which they profit from.
            Il y a 7 heures · J’aimeJe n’aime plus · 2 personnesChargement...
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            Deb Turcotte
            I was told of this happening by someone last week.. A husband and wife were in their neuro's office and they were being offered a new drug.. The husband questioned the doctor in to his views on it.. As husband wanted more info... The "good ...doctor" replied well he thought so highly of it he bought shares in it...
            I'm glad the doctor disclosed that little tidbit.. But it got me to thinking.. Would you think that was a good reason to believe a doctor that this was the treatment you or your loved one should go with... and should not all doctors have to at least disclose to their patients if they have done something like this.. I see this as a great conflict of interest..
            How many times were people I loved given a prescription by a doctor that had shares or stocks in that product or company... Things that should make you go hmmMMM.Afficher davantage
            Il y a 7 heures · J’aimeJe n’aime plus · 2 personnesChargement...
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            Jennifer Crossfield When I was first dx, they send all newby's too a meds meeting. They then proceeded to ask all of the MS'ers who their neuro's were. You were then told what drug you would be on, based upon your neuro! I thought it was based on symptoms. I thought it bazarre then. Now I'm plain angry!
            Il y a 6 heures · J’aimeJe n’aime plus
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            Lori Lumax what a hot topic! thanks Deb.. great convo
            Il y a 5 heures · J’aimeJe n’aime plus
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            Brenda Hanley How do you spell...........NO!!!!!!!!
            Il y a 4 heures · J’aimeJe n’aime plus
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            Nell Bleile if something goes wrong and he accepts his share of the responsibility i see no problem

 *Maria Meszaros Dekleer  I am crying tears of PURE JOY again! Day 9 post angio and I can ride my exercise bike (recumbent type) I haven't been able to do this since

 Maria Meszaros Dekleer  OMG I am going to be on tv next week! CTV Ottawa is coming to interview me! Now I am nervous!!!!!!!!!!!

* Tessa Rushton  So good, I just had to share my new friend's status:

Lindsay Menard: If the Italian who pioneered bringing pizza to North America was told that it was too “experimental” or “unproven to be good” and it can't be served here, what would our favorite food today be?

* Tessa Rushton  late night last night, kinda tired today! Good meeting though & I'm nowhere near as fatigued as I would have been pre-angioplasty! :)

* Tessa Rushton  Almost time to go to my neuro... can't wait :)

* Tessa Rushton  Neuro app't was excellent! He agrees I still need time to heal & gain strength, he was interested in the procedure information & it was a positive meeting. My
EDSS is back to where it was 2 years ago :)

Commenter cet article

annabelle 05/08/2010 14:30



dans tous les cas, que cette opé soit un véritable bon avenir pour nous tous ... ou pas ! ça a permis que la SEP soit exprimée et montrée à grande échelle et mondialement ! 


là on l'ouvre notre bouche !



Handi@dy 05/08/2010 23:03



Oui, mais si peu encore! Avec un résultat trop maigre! On persévère! Jusqu'au bout! :0010: