IVCC/CCSVI, vidéos et échos de murs de ce samedi.

Publié le par Handi@dy

ccsvi for dummiesBarre google de traduction indispensable!

Un jour avant la procédure, plus de 20 ans de SEP. De très fortes douleurs, des troubles cognitifs. Fatigue SEP importante.

Une semaine après: plus de fatigue SEP, amélioration cognitive, marche et concentration, parole. Elle tient debout dans sa douche.
Une vidéo pub pour collecter des fonds pour la recherche CCSVI:

 

Mark Lamp, Irishbear a passé son doppler, il a des sténoses et est content!

Fatigue, équilibre, diplopie...


Andrea répond à des questions, elle attend les dates de tests, elle est très anxieuse.

Linda, seconde intervention, davantage de progrès, audition, supporte la chaleur...
*Echos de murs:

*Kathleen Lynch
Accompanying a pre-angioplastered friend to her doppler sonogram this morning, and another pre-angioplastered friend to her doctor appointment this afternoon. Angioplastered friends don't let their non-angioplastered friends go to the doctor alone. (Yes, I said "angioplastered.")

*Denise Manley
Gone camping! Be Back next week some time!

*Michelle Walsh  via Shirley Renshaw : Shirley Renshaw THIS AMAZING DOCTOR WHO DISCOVERED ANGIOPLASTY DID SO IN HIS OWN KITCHEN. HE PRESENTED THE THEORY AFTER ONLY FOUR (4) ANGIOPLASTIES. THE REST IS HISTORY. NO STUDIES. NO BULLSHIT. NO ROADBLOCKING. THE GUY GOT A STANDING OVATION AFTER DOING FOUR (4) ANGIOPLASTIES. SO NAY SAYERS SHOVE THAT AND TRY TO ARGUE... THIS. HUGE NOTE: BEFORE THIS INCREDIBLE DISCOVERY DID YOU KNOW THAT PATIENTS WERE TREATED WITH MEDS. THAT'S ALL THEY COULD DO. SOUND FAMILIAR?????

Michelle Walsh
If you live in Saskatchewan, Canada or close to Biggar from Alberta get your butt to our INFO session on September 12th this is not happening anytime soon in Canada we are all sharing our experiences on this from all the places we went to and we all are feeling better its the truth. Good try "Spy" whoever just called me.....

*Danielle Macrel Vermeersch  ‎13 SEPTEMBRE , voilà enfin la date de mon intervention confirmée ce matin!!! plus vite que prévu, pourvu que ça duuuuuure...................

*Yvonne Andersen
Well, well, things just keep happening. Stopped at outpatient today because I'm still having problems with my ankle. Guess what?? Yep! It's cracked! I knew it! Sooo.. I told the doc I'd be back. Went to have lunch with my MS friend, changed the pick up time for the pup to this evening, came home to put the dogs out and now on my way for another xray and a boot cast. SHEESH!

Yvonne Andersen  Since my angioplasty and during my move I have not been paying much attention to all that is happening on facebook, although I do check in everyday I don't have time to read most of what is here. For all of you waiting for a call for treatment, I wish you that call soon. For all of you already done, welcome to a bett...er life, and to all of you who cannot go for one reason or another, we are still fighting for you!
Ginger MacQueen  Via CCSVI in Multiple Sclerosis: Dr. Simka presents his preliminary results in CCSVI angioplasty interventions at the ICCA conference in Frankfurt, Oct. 16

*CCSVI - MS 33 B.R.A.T.S.  I'm all done! :) Resting flat for a more hours. He ballooned 3 this time. Both jugs, again, and the iliac. Had a little may thurner going on. Multiple inflations in each to see if that gives a better outcome... :)


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