IVCC/CCSVI, vidéos et échos de murs de ce lundi.

Publié le par Handi@dy

ccsvi-MS-will-not-have-me.jpgBarre de traduction google très utile!

Peu de matière hier, des angios prévues dans les semaines suivantes et à la rentrée (la liste d'attente est longue, plus d'un an pour la Pologne!), nous aurons donc davantage de vidéos avant/après.

Il y a quelques jours, sur le mur d'Annabelle, à sa demande, un débat très sympa sur la recherche en France, avec une amie commune SEPienne chercheuse, mais pas dans la SEP. On a appris ce qu'on savait déjà: il y a un enjeu financier considérable et les Français sont très frileux et se reposent sur les recherches des autres pays, ce qui explique le niveau médiocre des chercheurs français qui partent travailler à l'étranger.

*Vidéo médicale du symposium récent, redite de ma part?

 

Redite, je crois... Le fils de ce médecin a la SEP, il avoue l'absence de progrès de la médecine dans le domaine. Il a été formé à la méthode Zamboni, s'est battu pour faire passer un doppler adapté et une IRM veineuse à son fils et a trouvé un excellent médecin qui a opéré son fils SEPien.
*Echos de murs:

*Patricia McDowell Kimball
Some people with MS experience little disability during their lifetime. But up to 60 per cent are no longer fully able to walk 20 years after onset, which has major implications for their quality of life and costs to society, the report said. Symptoms appear around 30 years of age on average.

Joanne Gauthier-Wiebe Interesting that 60 % are no longer able to walk after 20 years. My neuro told me in Feb that only a few people with MS wound up in wheelchairs or walkers....YEAH RIGHT! And she is my neuro!

Val Hoenecke Neuros also say not to have angioplasty for our stenosed veins. They are losing all credibility. They also say MS patients have no pain.

Kathy Schwindt-Huget well i had symptoms in my 20's - optic neuritis at 30 (undiagnosed) diasgnosed with MS finally at 41 - am 50 and wheelchair 4-5 yrs....all i am now to most neuros is a statistic nothing more. my neuro doesnt want to see me - refers me to a neuro clinic that just tries to prepare me to be bed ridden, they also told me not to stand any more!. havent been back there since (4 yrs ago)! and still stand to transfer! ;o) only see my GP for meds for pain & spacisity.

Debra Gauthier-Mcdonald for me,29 years was the onset, 41.5 years old was the end for walking and working. 42.5 years after angio starting to walk with walker and physio. Fatigue was never a factor, spasms were for me. All I take is LDN

Judi Palumbo  ‎@Rachael- LDN is Low Dose Naltrexone, the only "disease modifying drug" I would take for MS. There is an LDN group on Facebook and a lot of information on the internet. PM me if you would like more information.

*Deb Turcotte  BIG SASK CCSVI MEETING!!
Helping Spread the Word of Important Meeting.

Deb Turcotte
CCSVI SASK. MEET & GREET INFO SESSION Sunday Sept 12. Biggar Community Hall Biggar, Sask. 11-3:30 Volunteer Speakers have had CCSVI Treatment. Cost 10.00 includes lunch, send payment to box 1766 Biggar Sask S0K 0M0 TELL ALL, Hang a poster, At work, church, the grocery store, gas station, Dr.s office, coffee shop, thanks!! We want a full house this is very important information!!

*Kathleen Lynch
I use to be able to keep dates of people's angioplasties in my head. Now, there are so many I have to write them on the calendar. If you are reading this and have an angioplasty scheduled, please let me know the date and location (if you can) in the comments below.

Tracie Welsh September 26, 2010 Los Cabos Mexico!

Sherry Dinnis Pitman Had, Aug 4 in Henderson nv!!

Bjørn Eirik Westby September 2, Sofia, Bulgaria

Giselle Benoit-Humber John Humber had, August 5,2010 Alexandria, Egypt.

Tish Hourmouzis  Sept 20 Albany, NY

Nancy Madejek Novak August 24, Albany, NY!

Kathy Parker  My husband John August 31st Albany, NY

Denise Manley  lol I've been keeping a prayer calendar of people for 4 months now and even that gets booked!

Stephanie Dunning Chesley I am still waiting to hear from a doctor in the U.S. to have my treatment. I'll let you know.

Trish McCallum  Sept 24 Albany NY woohoo

Angela Russo october 19th in sofia, bulgaria...yeah!!
Angela Breaux OQuain Aug. 23 San Diego

Tarah Virgil  You already know mine, but Sept 1st San Diego :) - wanted to be part of this awesome list!!!!

*Michelle Walsh
CCSVI SASK. MEET & GREET INFO SESSION Sunday Sept 12. Biggar Community Hall Biggar, Sask. 11-3:30 Volunteer Speakers have had CCSVI Treatment. Cost 10.00 includes lunch, send payment to Deb Turcotte box 1766 Biggar Sask S0K 0M0 TELL ALL, Hang a poster, At work, church, the grocery store, gas station, Dr.s office, coffee shop, thanks!! We want a full house this is very important information!!

Commenter cet article

Annabelle 23/08/2010 22:14



ça va faire comme Dr Cabrol ... on oubliera que c'est pas lui le pionnier de greffe de coeur ... j'pense que la France n'attend pas le bras croisés en fait. Elle attend une opportunité pour
reprendre l'étude modeste de Zamboni et "faire mieux" .... 


c'est bien possible qu'ils se planquent pour faire des recherches CCSVI ...


les médecins français n'aiment pas ne pas être les pionniers ! 



Handi@dy 26/08/2010 13:05



j'espère que non!!! :0010:



tiot le chti 23/08/2010 15:36



bonjour


je te souhaite une bonne semaine



Handi@dy 26/08/2010 12:57



merci::0010: