IVCC/CCSVI, liens et articles de ce lundi.
Chairman, Department of Radiology
Professor of Radiology
Professor of Surgery and Emergency Medicine
qui est intervenu lors du symposium ccsvi et a opéré de nombreux patients SEP!
*Le même professeur et médecin répond à des questions sur ce forim ccsvi!
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Stuart Schlossman : In Honor of.........
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On Monday August 9th at 7pm, there is a community meeting being held in Victoria BC, to simply discuss CCSVI.
There will be talks about the state of CCSVI in Canada, and several people will be talking about their own CCSVI angioplasty treatments in Mexico, Poland, India and the USA.
I heard the media will be there, and hopefully a few from Government and the Ministry of Health will be joining the audience. The Community Centre holds 250.
This meeting is now completely sold out! The facility is fully booked to capacity.
This is awesome news to see such community support for CCSVI.
I have been told that this meeting is being taped, and will be put on-line later.
Two days after this meeting, on August 11th the BC Ministry of Health is supposedly having a meeting to discuss the impact of CCSVI on MS.
Lets hope this ground level show of support, makes an impression on the Government officials, and the evenings message is received loud and clear by the media.
The level of support from the community, clearly shows the power of social media. The exchange of CCSVI info is moving at 1,000 miles an hour around the globe. This has changed the face of medicine and MS.
As more info or pics come in, I will update this note.
WaYnE
Victoria CCSVI Community Information Session:
http://www.facebook.com/ev
http://www.facebook.com/pa
Procedure to unblock veins not available in Canada
Kim Cooper is in constant discomfort, but she doesn't show it.
The 36-year-old North Bay mother feels like her legs have frostbite below the knee, she has fatigue, pain, bladder and cognitive problems, forcing her to take medical leave from her human resources job last year and has since lost drug benefits when the company shut down.
She has relapsing-remitting multiple sclerosis and can't predict what symptoms might flare up on any given day.
She's taking her health care into her own hands, paying $15,000 to travel to Costa Rica in October to undergo a medical procedure that has Canadians like her with multiple sclerosis hopeful for a better quality of life.
"It seems the first question we always get is why can't we have it done here? It's the same question that we can't seem to get an answer to," Cooper says.
On Oct. 11, she expects to undergo the widely publicized procedure discovered by Dr. Paulo Zamboni, a vascular surgeon from Italy, who believes unblocking veins using a balloon technique similar to angioplasty could restore blood flow from the brain and treat MS patients.
The condition is chronic cerebrospinal venous insufficiency, also known as CCSVI. Liberation treatment, the procedure to unblock the veins, is not available in Canada.
"There's a good chance of (a vein) collapsing again after you're done. I think we're prepared for that. We talked about that. I don't plan to go back to Costa Rica to have it done again. But if it works, and it's proven in my mind, I'll push for it in Canada," Cooper says.
The Coopers joined a rally on Parliament Hill in May to bring the treatment to Canada, and wrote to their provincial and federal representatives for support.
"I don't think we're going to quit with our course of campaigning, whether she's cured or not," says her husband Rob Cooper.
"There's got to be hundreds of thousands of people out there that can't (pay). We're lucky enough that we have the means to actually pay for it ourselves."
There is no cure for the neurological disease that affects about 60,000 Canadians, and it's unclear what causes it.
The MS Society of Canada and the National MS Society in the United States are jointly funding four research studies in Canada, while the Canadian arm of the organization is working closely with Ontario's health ministry, says Nipissing MPP Monique Smith.
"We still consider it as an experimental treatment. Until it's proven through testing, we can't really consider insuring it, but we're glad to see that those clinical trials are taking place," Smith says.
Smith says she has received letters about the treatment from others in the riding and responded to Cooper's letter, saying it was forwarded to Health Minister Deb Matthews.
Nipissing-Timiskaming MP Anthony Rota did not answer Cooper's letter and has not responded to a request for an interview.
It's a provincial issue, although the federal government plays a role to help fund the treatment, says Carol Hughes, NDP MP for Algoma-Manitoulin-Kapuskasing.
"What we're saying is do the study at the same time as you're giving the treatments," Hughes says, noting the procedure costs about $1,500.
"Think of how much that would alleviate our health care system, especially the long-term care and a lot of the agencies that take care of these patients. These people want to have a quality of life, and this is an opportunity for them to have that quality of life. Why is the government holding them back?"
Hughes was part of a subcommittee on neurological disease looking into liberation treatment and says she heard first-hand accounts of patients who benefited from it.
Kim and Rob Cooper were learning how to administer injections when she was first diagnosed ahead of their wedding almost eight years ago.
They plan to celebrate their anniversary in San Jose, Costa Rica, while their son Mack, 19, and daughter Sonia, 12, keep in touch with them over the Internet from home.
Rob Cooper admits he's more worried than he looks. The appliance repairman prefers to get jobs done quickly and would rather the family pay for the procedure now instead of waiting to see if Canada will offer it later.
They're submitting their medical bills to the province in hopes of someday being reimbursed.
Kim Cooper seems surprised she doesn't feel more nervous, although she has kept a watchful eye through Facebook groups to track others who have undergone the procedure.
"It's got to be your own decision," she says.
"Whatever feels right to you."
mcalabrese@nugget.ca"
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*Controversial surgery let man jogging again
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*Alberta Health Services Information Sheet
on
Multiple Sclerosis (MS) and CCSVI
*Workshops - MS 2010 Conference
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CCSVI in MS Toronto : Subcommittee on Neurological Disease - Tuesday June 15 2010
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