IVCC, CCSVI, derniers articles et liens!

Publié le par Handi@dy

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Heart Superdoc calls foot-dragging on CCSVI "unethical"

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Gothic Gourd Girl Rants (about MS, CCCSVI, life, and HALLOWEEN!)

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Tisa's MS Liberation Experience

*Canadians To Be Vaccinated With Live H1N1 Virus with MSG For The 2010/11 Flu Season

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Marcel Gignac's CCSVI Surgery

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New Brunswick Tories say they support unproven liberation therapy for MS

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Perry feels Liberation Treatment's benefits

 

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 - Estevan's Doug Perry has returned from Mexico, where he underwent the Liberation Treatment for multiple sclerosis. -  

Estevan's Doug Perry has returned from Mexico, where he underwent the Liberation Treatment for multiple sclerosis."
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par CCSVI in MS Toronto, mardi 13 juillet 2010, à 21:26

Countless MS sufferers are waiting for their miracle.

They are facing needless roadblocks for a simple angioplasty treatment that is available for everyone else in Canada, except for those wearing an MS arm band.

It’s like we are living in a CCSVI Cold War. We see MS sufferers armed with the 2010 tools of social media, fighting the very people and organizations who should be acting compassionately.

Below the radar and behind closed doors, countless MS sufferers quality of life deteriorates day by day. This can be a one way street, that will lead to permanent disability. For some, time will simply run out.

Some Doctors are following their compassionate heart and making a difference. Many times at odds with the Medical Establishment and governing bodies.

Steve Garvie on Parliament Hill said: “They’re my heroes. I think that you should let them be heroes for everyone else?”

But still, the roadblocks remain. The emotional toll cannot be measured.

We are also seeing the financial situation become unsustainable for countless. They say that if the Government did this angioplasty treatment, it would cost the taxpayer about $1500. This is a fraction of one months financial cost to the MS sufferer and to each Canadian taxpayer.

The financial payback to the taxpayer could be less than 1-month.

Blocking access to CCSVI treatment is not acceptable, and their arguments against this do not add up. Literally!



Here are real examples provided to me. It shows a list of some general items:

$12,300 in provincial government disability per year.

$ CPP Eligibility still waiting on final number.

Copaxone: $74 a month I would pay thanks to disability. $17,000 per year to the tax payer.

Alertec Fatigue Pill $2.50 per month thanks to disability $94 without.

Heat and Electricity $900 per year.

Various bills cable, cell phone, internet, $1800 per year (estimate)

Pet $800 per year.

Car insurance and plate $1,600 per year.

Food currently $25 per week versus $100 per week with girlfriend.

Gas with no job $10 per week. With job gas bill would be $20 per week.

Income Taxes on disability $0 Income taxes on $40,000 is about $15,000 per year.

Car repairs $1,500 per year. On disability $0

Vacation $1,000 per year. On disability $0

Entertainment $1,000 annually. On disability $0

Family birthdays, events, Christmas, Holidays $1,000 On disability $100

Home ownership $1,000 mortgage per month.



This doesn’t add up. Disability income is not enough. It’s completely unsustainable.

The fight continues, the suffering continues, and the senseless arguments against CCSVI continue.

I feel were are nearing a tipping point. We’re not there yet, but access to CCSVI Treatment is getting closer.

Lets hope it is sooner than later, because the cost to MS sufferers is too high.

WaYnE"
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MS doctors attacked for their skepticism

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Proposed MS treatment stirs hope, controversy

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laboratory The EMA's decision is a blow to  

Shares in German drugs and chemicals group Merck have fallen after European regulators refused approval for a new multiple sclerosis (MS) treatment.

 

Merck shares fell 10% on Friday after the European Medicines Agency (EMA) said the benefits of Merck's cladribine drug did not outweigh the risks.

On Wednesday, rival drugmaker Novartis won backing in US for its own MS pill.

Merck said it was considering its next step, and did not rule out an appeal against the EMA's decision.

The company expects a decision from the US Food and Drug Administration over a marketing approval for cladribine later this year.

But the EMA's decision is seen as a blow to Merck in the race for a slice of the huge US market for MS treatment.

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Explanation Time - Dispelling the Myths

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MS 'liberation' treatment works: patient

Tells feds to move forward on registry, clinical trials

Jill Whitford underwent the controversial “MS liberation” surgery in Mexico in June, and says she feels great. (WINNIPEG SUN)
Jill Whitford underwent the controversial “MS liberation” surgery in Mexico in June, and says she feels great. (WINNIPEG SUN)

Jill Whitford thinks Canada’s health minister is wrong.

Whitford, a resident of St. Georges, underwent the controversial “MS liberation” surgery in Mexico in June, and says she feels great. She also feels the government is doing multiple sclerosis patients a great disservice by accepting the recommendation of the Canadian Institutes of Health Research to delay clinical trials on the controversial procedure until more information is available.

“The people with MS are the experts. Ask me,” Whitford said. “This is my life. I will go wherever I have to go to get my life back so I don’t have to feel (sick). Who are you to tell me when I can start feeling better?”

Whitford was diagnosed with MS 28 years ago. Last year she heard about a new procedure that uses angioplasty to open up veins to increase the flow of blood draining from the brain. An Italian doctor has linked the procedure to improvements in MS patients, but his work has been criticized by many.


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Sleeping With The Enemy

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Purchase the full-text article

Steven M. LeVine*

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Are profits behind attacks on MS treatment?

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New Brunswick premier implores Liberal supporters to pull out the vote

* One Person One Fare program

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Two kinds of multiple sclerosis, two different responses to beta-interferon, study shows

BY BRUCE GOLDMAN

Steve Fisch Photography description of photo

Research in Lawrence Steinman's lab indicates there may be two versions of multiple sclerosis, and that they respond differently to the primary drug for treating the disease's symptoms.

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