(¯`·._. MA SEP, MON ENNEMIE INTIME. ._.·¯)Atteinte d'une SEP (sclérose en plaques) de forme progressive rapide depuis 98, je m'efforce d'apprivoiser mon ennemie intime. Coups de blues, de gueule et éclats de rire!
Last time I checked, Yves Savoie was still the Canadian MS Society President. On Parliament Hill May 6 2010, he was asked about the CCSVI ratification document from the International Union of Phlebology.
Yves said: "Unfortunately, I'm not aware of it, and I'd be delighted to have the reference to explore it."
This CCSVI document is one of the most important in the history of CCSVI. This condition was ratified 9-months ago by the International Union of Phlebology, in 47-countries, way back in September 2009.
Shouldn't the head of the MS Society be aware of this document? How can he advise the Federal Health Minister, of any Federal or Provincial Health Authority, when he is not prepared for the job?
If Yves was working at Best Buy selling TV's, and displayed such a lack of product knowledge in front of their customers, he would have been let go.
This is what you get from an organization that spends $14,630,599 dollars for administration and fund raising. (48% of $30,480,416 revenue)
That's right. Nearly 1/2 of the money they raise is used for administration costs!
Time after time the MS Society "talking heads" appear on TV or in front of some committee, and show how completely oblivious they are. Many times they actually seem to be blocking access to CCSVI Testing and Treatment. Every one of them seem to be completely aware of every negative study or "problem" with CCSVI. But they sure don't appear able to point to the massive body of evidence supporting CCSVI.
We all have seen them dredge up the various "talking points" that Neuros use to try to discredit CCSVI. I know you have seen this time and time again. If this happened once, I could understand, but there is a steady stream of verbal garbage spewing out from staff who work at their Toronto headquarters.
It is one thing to be so out-to-lunch, but for $14,630,599 in administration costs, MS sufferers deserve more.
During the last Parliament Hill meeting with Dr. Zamboni, and Dr. Simka. Karen Lee the Assistant Vice-President of Research for the Canadian MS Society, said some interesting things.
Karen was quick to bring up the recent study showing where Neuros in Europe said that there is no connection between CCSVI and MS. But was unaware that over 1,000 around the globe have been successfully treated for CCSVI. This important body of CCSVI Treatment evidence is brushed aside. Treated MS sufferers are getting better. Something no pill can deliver.
Several MP's mentioned that the MS Society of Canada appears to be fighting CCSVI, against the wishes of the very people they are suppose to be supporting.
Remember Ms. Royal on the CBC. The host even mentioned that he didn't feel that there was a positive message coming from the MS Society. Zero Enthusiasm.
The recent announcement of research funding, does not include any vascular experts, and offers no treatment study options. They simply supported research that will take years.
They are systematically going out of their way to act willfully ignorant, and they quickly point to issues that help support roadblocks to CCSVI Testing and Treatment options.
The MS Society of Canada has evolved into a fat bloated bureaucratic organization that burns through their cash. Their record is there for all to see.
Their mindset is so last century, and their actions no longer support the wishes of MS patients.
This is what you get for $14,630,599 dollars.
This crap just gives me a headache. I think I will go do a lap of my local Best Buy.