IVCC/CCSVI, articles et liens de ce mardi.

Publié le par Handi@dy

Barre google de traduction indispensable si vous n'êtes pas bilingue!

*Les libéraux arrivent à amener un débat sur la sclérose en plaques à la Chambre des Communes. (Canada)

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Victoria BC CCSVI Meeting - Aug 9 2010

What Causes CCSVI?

Health Care Professional of the Year Starfish Award

*CCSVImedication.com - Pre/Post Liberation Procedure Considerations

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Scarborough wife's plea for life-saving procedure - COMMENT ON THIS STORY

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MS trials worth it

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Virus Infection May Trigger Unusual Immune Cells to Attack Nerves in Multiple Sclerosis

MS patient’s life changed

*Follow the sunshine vitamin

*Science may prove angioplasty technique helpful in treating MS

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Sask. Backs MS treatment

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Ontario should follow Saskatchewan's lead on MS (on progresse!)

 


Several years ago they found that dog food was tainted. Pets were getting sick. The food they were eating was no longer beneficial, instead it was harmful to those pets we lovingly care for.

The shipments of food were stopped and because they didn’t know which batch was affected, they pulled all batches off the shelf, in Canada and the USA.

The manufacturer did the right thing, and no dog food left the factory until they figured everything out, and tested each batch to make sure it was safe for the animals to consume once again. This process took several months.

In Canada, the MS Society, and the many Neuros are still pushing the interferon based drugs aggressively. Early in 2010, we saw Stanford studies that indicated that roughly 1/3 of those taking these MS medications will be harmed by these drugs. Their disability will be made worse.

They do have a blood test that can determine who can safely take these drugs, and which people should not be given these drugs.

But even last week, I know of examples where medical clinics are promoting the interferon based medications. They don’t have access to the blood test to see if the MS patient standing in front of them, is the one out of three who would be harmed by this medication.

Why have they not stopped the distribution of the interferon based medications, until they sort this mess out?

Why are they playing Russian Roulette with your health?

To me, if they would stop the distribution of dog food, they should also stop the distribution of the interferon based MS drugs, until this is sorted out.

Sadly the MS Society, the Health Ministries, and the Neuros think it’s completely acceptable to push interferon based drugs that are harming 1/3 of those who hope to see their MS suffering reduced. This is criminal.

So as it stands right now in Canada, we have a situation where dogs are being treated with more respect than those with MS. That’s a fact!

To quote Dr. F. Alfons Schelling:
“In view of the given facts we must ask ourselves whether the MS patient's shameless exploitation for an as senseless as profitable drug experimentation, grounded in an illogical MS "definition" and "identification", does not form an ethical issue.”

We are currently in a battle to have the simple CCSVI angioplasty treatment accepted. There have been more than 2,000 safely treated around the globe now, in 2010. But so far roadblocks are holding firm.

They don’t want to start a simple 45-minute drug free procedure that is showing benefits clearly unmatched by any known MS drug treatment. They don’t even want you to get a Doppler Ultrasound, to see if you have a blood flow problem.

While at the very same time those living off MS don’t want to halt a drug therapy that is harming one in three! I wouldn’t treat my dog this way in a million years. Does this seem right to you?

No wonder we are starting to hear Neuros talking about how ashamed they are of their Neurological community in Canada and the USA. They are telling the public how ashamed they are of their fellow Neurologists who continue to act willfully ignorant.

Cracks are forming in Neuroland. A faint line is being drawn in the sand between awesome open-minded Neuros who want to help, and those other Neuros who are still trying to pay off their Mercedes!

This is such a pathetic situation that should be addressed.

WaYnE



Two kinds of MS, two different responses to beta-interferon, study shows:
http://med.stanford.edu/is m/2010/march/sclerosis.htm l

Interferon’s May NOT Be Good for Some People with MS:
http://ms.about.com/b/2010 /03/30/interferons-not-goo d-for-some-people-with-ms. htm"

*Courrier de réponse de Michelle Obama, l'épouse du président US, dont le papa avait la SEP:

http://www.facebook.com/photo.php?pid=161243&id=100001006389470&ref=mf#!/photo.php?pid=161243&id=100001006389470&ref=mf&fbid=132110000165879

*Courrier de réponse d'un sénateur américain:

http://www.facebook.com/photo.php?pid=161243&id=100001006389470&ref=mf#!/photo.php?pid=161246&id=100001006389470&ref=mf&fbid=132110790165800

 

Bloomington woman to undergo controversial MS surgery

Story Image

Alycin Bektesh  | IDS

Cynthia Ashworth sits in her living room July 13 surrounded by her daily necessities. Ashworth has been battling multiple sclerosis for sixteen years. This October, she intends to travel to Mexico to receive surgical treatment for chronic cerebrospinal venous insufficiency because the procedure has not been approved in the United States.

 

can’t do basic things like walking, grooming or dialing the phone.”

Ashworth has two aides who work 25-hour shifts.

“It pretty much dictates everything we do,” said Tom Roeger, Ashworth’s husband of 13 years. “Cynthia can’t be left alone anymore, so if Cynthia’s aides aren’t here, then I have to be here.”

There is no cure for the approximately 2.1 million people MS affects.

FDA-approved treatments and medicines are available, but Ashworth chooses an alternative.

“I never took (FDA-approved drugs),” Ashworth said. “I was warned to avoid these drugs like the plague.”

She has tried several diets, including one low in saturated fat. Ashworth said she thinks the diets have been somewhat effective: Her hands do not shake as much, and she sleeps better and has more energy.

Ashworth also takes several vitamins and a few non-narcotic painkillers.

With so many questions and no solutions, Ashworth has decided to travel to Mexico for a controversial surgery. The operation is an endovascular surgical procedure for chronic cerebrospinal venous insufficiency, a reported abnormality in blood drainage from the brain and spinal cord, which is now being linked to the nervous system damage found in MS patients.

Though still undergoing research in the United States, the surgery is in practice in other countries, including Mexico.

Ashworth will have the operation at Mexico’s Sanoviv Medical Institute and receive a procedural consultation in October.

“If I can’t get it done here, Mexico doesn’t seem so far away,” Ashworth said. “There is nothing available in the standard medical community, nothing at all. I’m willing to do it if that’s what it takes.”

Dr. Paolo Zamboni from the University of Ferrara in Italy discovered that a surgical procedure similar to an angioplasty — which involves inserting a tiny balloon or stent into blocked veins to improve the flow of blood — might ameliorate the effects of MS.

Zamboni’s research suggests that MS is a vascular condition and not an autoimmune disease.

David Mattson, a neurologist and program director of the Neuroimmunology/MD program at the IU School of Medicine who does not treat Ashworth, said there is not enough medical evidence that CCSVI — said to be caused by too much iron deposition in the brain — is a common problem among MS patients. Sixty percent of MS patients have this problem, he said — but, he stressed, this is not 100 percent.

According to the National MS Society, because of the procedure, one person died of a hemorrhage in the brain while taking a blood thinner, while another patient had a stent that dislodged and moved to the heart, which required emergency open-heart surgery for its removal.

But the risk of the surgery is worth the results for Ashworth.

“I have no quality of life — almost none,” Ashworth said. “It doesn’t really scare me to have it done. I’m willing to go to another country where I don’t know what their medical protocols are. I don’t think it’s a dangerous thing to have done. I think it’s very promising. I’m frustrated and mad that I can’t have it done here.”

More research needs to be done, Mattson said. Such studies are being conducted at the University at Buffalo Medical Center in Buffalo, N.Y., and the Center for Vascular Awareness in Albany, N.Y.

“People are desperate,” Mattson said. “We don’t know if venous drainage could cause further damage. ... MS comes in relapses and remission, so we don’t really know if this actually works. People are getting false hope.”

The prospect of the surgery consumes Ashworth’s life, as well as the lives of those who live with her. She and her aides spend most of their time researching CCSVI and the procedure. They also send letters to politicians, asking to make the surgery available in the United States.

“Dealing with this disease is a major part of my life — not just the complications about daily life, but the time for trying to improve it,” Ashworth said.

Ashworth tries to remain positive about her life, especially with her upcoming consultation.

She has tried to connect with local residents who have MS but felt like the MS support group in Bloomington could do nothing positive for her.

“People there were very negative and would get together and talk about how awful it is,” Ashworth said. “Why do I need to sit with people and talk about how bad it is? I don’t need that, because I live with it.”

Ashworth attempts to focus on what she can do. She is a writer but is unable to type on a keyboard or use a pen. She said she “can’t do the physical part of the writing, but I can go to the mental part of it.”

She is currently writing a murder mystery that takes place during the medieval times. She dictates the fictional novel to her aides, who transcribe the story.

Her positive outlook and ability to focus on what she can do keeps her motivated and busy.

“Considering all that she goes through, I never see her get angry or impatient or mean,” said Deborah Riley, one of Ashworth’s aides. “I would be the angriest, most impatient person all the time. But she is always sweet, loving and gentle. I’m the salty one around here.”

Ashworth contends that life with MS is a difficult one to lead, and depression cannot always be stopped from setting in.

Bursting into tears, she said, “There is no point in being angry, but that doesn’t mean I’m not ever.”

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Researchers regenerate nerve connections after spinal injury

 

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